This is a very interesting website: Patients Like Me®. People with various diseases such as ALS or epilepsy share information about their disease. Sharing can be restricted to people in that web-based group or it can be revealed to the public – the person can choose. Members share various kinds of patient data including years since diagnosis, weight, etc. The website could be a really powerful tool. It is a commercial website, and it shares some information with healthcare and other companies.